In this paper we use a case study of a proof-of-concept blockchain system for management of the consent process in sharing of participant health research data. The solution is assessed for the evidentiary value of the records it produces. Based on an archival theoretic evaluation framework, recommendations are provided as to how to increase the evidentiary quality of both on- and off-chain records through design changes or enhancements that would bring the solution into compliance with archival requirements for preservation of trustworthy records.
Presented at IEEE blockchain, taking place in Halifax, NS. Sprang from a collaboration between the research teams at the UBC iSchool (led by Lemieux) the Prevention of Organ Failure Centre of Excellence (PROOF) (led by McManus and Ng) and Deloitte.
Darra Hofman; Karen Lam; Casey Shannon; Sara Assadian; Bruce McManus; Raymond Ng; and Victoria L. Lemieux, “Building Trust & Protecting Privacy: Analyzing Evidentiary Quality in a Blockchain Proof-of-Concept for Health Research Data Consent Management,” IEEE Blockchain Conference, Halifax, N.S., Canada, July 27-Aug. 3, 2018.