Blockchain@UBC Monthly Research Talk- Self-Sovereign Health Data Management: Opportunities and Challenges by Dr. Victoria Lemieux
Abstract:
There is a news story almost every day about how individuals’ personal data are being harvested, shared with and used by third parties without their consent and in ways that have real potential to cause harm. The result is an erosion of user trust and a reluctance to use services that gather sensitive information. This remains true for a significant percentage of individuals even if they could greatly benefit from receiving a personalized health service that they can use to understand their health risks and maintain or improve their overall health. Individuals’ reluctance may stem from uncertainty about how health data services will store and use their data over time. Recent revelations about how Facebook, 23&Me, and other platforms use individuals’ sensitive personal data validates concerns that consumers’ data may be shared with third parties without their informed consent. This presentation discusses how the' Personal Health Wallet Project, a collaboration between Molecular You, the University of British Columbia, StonePaper, and the Digital Technology Supercluster is addressing these concerns by enabling self-sovereign health records management. Information on the project is available here.
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