SecureConsent: A Blockchain-based Dynamic and Secure Consent Management for Genomic Data Sharing

Researcher(s)

Ibrahim Tariq

Date of Publication

Description

The paper addresses critical challenges in genomic data sharing for precision oncology initiatives. It emphasises the importance of patient consent and control over sensitive genomic information. Existing methods often fail to accommodate patient preferences and ensure transparent data usage. In response, "SecureConsent" introduces a patient-centric consent management system tailored for genomic data sharing.

Key Contributions of SecureConsent:
-Dynamic Informed Consent: Allows patients to modify their consent preferences in real-time.
-Decentralized Access Control: Establishes a robust framework ensuring patient-centric data access.
-User-Friendly Interface: Simplifies interaction between patients and data requesters.
-Performance Evaluation: Includes an analysis of system efficiency, such as gas cost, latency, and transaction throughput.

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First Nations land acknowledegement

We acknowledge that the UBC Point Grey campus is situated on the traditional, ancestral, and unceded territory of the xʷməθkʷəy̓əm.


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